Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.
The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National ...
When I realized I hadn’t fully processed what it was like to grow up with cystic fibrosis, I turned my experiences and feelings into a story to help me better understand them. What started as a ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
I was labeled as different in school because I was always in the nurse's office, coughing, or eating like a pig. It all started in elementary school and still happens today, even though I am in ...
My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
Ten (almost 11) years ago, I became a young mom at the age of 17. Bringing my son home was such a bittersweet moment — I was so in love with him, but I knew my life as a kid was over. Two weeks later, ...